Navigating A Scary Diagnosis with Dr Edward Rogoff
- E69
- 46:59
- May 8th 2025
If you or someone you love has ever faced a health scare, this is a conversation you won’t want to miss. My guest today is Dr. Edward G. Rogoff, an accomplished educator and advocate whose personal journey is nothing short of extraordinary. Diagnosed with hemophilia as a child, Dr. Rogoff faced a lifetime of uncertainty—until a liver transplant in adulthood led to an unexpected cure. His experience sparked a lifelong commitment to patient advocacy, organ donation awareness, and reshaping how we approach chronic illness.
He’s served on the boards of the Hemophilia Association of New York since 1980 and LiveOnNY, the major organ donor organization for the New York City metropolitan area, and now he’s sharing his wisdom in his new book: "Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve."
In this conversation, we explore the power of building the right medical team, managing uncertainty, denial, having tough conversations, staying resilient and how to not let a scary diagnosis overtake your life and keep it all in perspective.
Scary Diagnosis Navigating Fear, Finding Strength, and Securing the Health Care You Deserve
Rosanne Corcoran hosts Daughterhood the Podcast, conversations for adult children caring for aging parents, from dementia and caregiving to finances, end-of-life planning, and grief. More at https://daughterhood.org
Daughterhood The Podcast: For Caregivers
Daughterhood the Podcast is hosted by Rosanne Corcoran, whose caregiving journey began with the dementia diagnosis of her fiercely independent mother. That diagnosis opened the door to 12 years of sandwich caregiving, caring for aging parents while raising children.
Rosanne brings her authentic voice to each conversation and talks with experts in all fields about the challenges caregivers face when caring for their aging parents. Each episode offers practical guidance and honest conversation on dementia, caregiver support, financial and legal planning, end-of-life decisions, and grief. Whether you're just noticing changes in a parent or deep in the caregiving years, you're not doing this alone.
As Rosanne knows firsthand, caregiving is filled with uphill climbs, stress, and grief, all while trying to do the best you can every day. Join her in Daughterhood.
Rosanne cared for her mother over a 12-year span, from supportive caregiver to in-home, sandwich caregiver for her mother’s final 6 years.
After experiencing first-hand the stress and isolation caregiving brings along with the lack of meaningful resources for caregivers, Rosanne created Daughterhood The Podcast: For Caregivers.
In each monthly podcast, Rosanne carries her experience as a primary in-home caregiver and Daughterhood Circle Leader into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.
The podcast’s subject matter has ranged from practical advice like dealing with dementia behaviors, to siblings and caregiving, to end of life issues, grief and everything in between. Guests have included physicians, best-selling authors, dementia experts, caregiving advocates and thought leaders.
Rosanne has been featured in CNN Health, The Philadelphia Inquirer, Barron’s, Next Avenue and others. She is also a proud member of AlzAuthors.
Next Avenue named her one of their Influencers on Aging 2024 and Agingcare.com named Daughterhood the Podcast: For Caregivers #1 in their list of Essential Caregiver Podcasts. Rosanne also facilitates multiple Daughterhood Circles monthly.