The Final Days of Hospice and What to Expect with Barbara Karnes
- E54
- 58:15
- February 8th 2024
Today my guest is Barbara Karnes, an Award Winning Nurse and End of Life Educator. She was NHPCO (The National Hospice and Palliative Care Organization) Hospice Innovator Award Winner of 2018 & the 2015 International Humanitarian Woman of the Year.
Barbara has put her 40 years of experience regarding education, care, and support of dying people and their loved ones into numerous books and resources. One book in particular Gone From My Sight: The Dying Experience, published in 1985, has sold over 35 million copies world wide. Known in the hospice world as “the little blue book” it is the most beloved and widely used resource of its kind. All of her booklets are essential resources in navigating end of life care.
Today we discuss how to prepare ourselves and our care partners including how to chose the right hospice, what happens with food and other physical and emotional issues at end of life and how we can be prepared and present as caregivers for those final moments.
Daughterhood The Podcast: For Caregivers
Daughterhood The Podcast is hosted by Rosanne Corcoran, who's journey into caregiving began with a dementia diagnosis of her fiercely independent mother, opening the door to a 12-year journey into sandwich caregiving. She brings her authentic voice to each conversation and discusses challenges caregivers face with experts in all fields.
This monthly podcast aims to provide insight into navigating the healthcare system, resources, support, and community to caregivers. As Rosanne knows first hand, caregiving is filled with uphill challenges, stress and grief, while trying to do the best you can everyday. Every month she offers information, inspiration or even just a little company. Join her in Daughterhood.
Rosanne cared for her mother over a 12-year span, from supportive caregiver to in-home, sandwich caregiver for her mother’s final 6 years.
After experiencing first-hand the stress and isolation caregiving brings along with the lack of meaningful resources for caregivers, Rosanne created Daughterhood The Podcast: For Caregivers.
In each monthly podcast, Rosanne carries her experience as a primary in-home caregiver and Daughterhood Circle Leader into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.
The podcast’s subject matter has ranged from practical advice like dealing with dementia behaviors, to siblings and caregiving, to end of life issues, grief and everything in between. Guests have included physicians, best-selling authors, dementia experts, caregiving advocates and thought leaders.
Rosanne has been featured in CNN Health, The Philadelphia Inquirer, Barron’s, Next Avenue and others. She is also a proud member of AlzAuthors.
Next Avenue named her one of their Influencers on Aging 2024 and Agingcare.com named Daughterhood the Podcast: For Caregivers #1 in their list of Essential Caregiver Podcasts. Rosanne also facilitates multiple Daughterhood Circles monthly.