No Brain Left Behind
- E22
- 35:43
- March 27th 2025
This episode of Defy Dementia explores the relationship between developmental disabilities and dementia. Guests Dewlyn and Anna Lobo, a daughter-mother duo who live in Ottawa, share their personal journeys as they navigate the health challenges that people with Down syndrome and their carers may experience. Then, Dr. Yona Lunsky (Centre for Addiction and Mental Health; CAMH) discusses why it’s so important for our physical and mental health to increase awareness of and fight stigmas surrounding developmental disabilities.
Dewlyn Lobo and Anna Lobo are a daughter and mother, respectively, who live in Ottawa. Together, they are each other’s caregivers and both are committed to an activity-centred lifestyle that is designed to boost their physical and cognitive health. Dewlyn, 37, lives with Down syndrome and is employed part-time as an office worker and web researcher at the Occupational Health and Safety office at the House of Commons in Ottawa. As of June, 2025, she has worked there for 10 years. Anna, 72, originally worked as a nurse in Mumbai, India. In 2004, she answered a help wanted ad for nurses in Nunavut. She moved to Rankin Inlet in 2005. Her husband and Dewlyn joined her there in 2006. Eventually, the family moved south to Ottawa. Anna now serves as a teacher at the Centre for Addiction and Mental Health (CAMH) coaching other caregivers of adults with developmental disabilities on wellbeing and cognitive health. Dewlyn was also a teacher at CAMH, speaking to other adults with developmental disabilities.
Yona Lunsky, PhD, CPsych, FAAIDD, is the Scientific Director of the Azrieli Adult Neurodevelopmental Centre, Director of the Health Care Access Research and Developmental Disabilities Program (www.hcardd.ca) and a Senior Scientist at the Centre for Addiction and Mental Health (CAMH), in Toronto, Canada. She is also a Professor in the Department of Psychiatry at the Temerty Faculty of Medicine, University of Toronto; an Adjunct Scientist at ICES; and a Clinical Psychologist. She has been studying the mental and physical health of adults with developmental disabilities and their families for more than 25 years, and has published over 300 papers on this topic. She works closely with people with developmental disabilities, their families, and clinical providers to identify health care gaps and co-design innovative solutions.
Defy Dementia – The podcast for anyone with a brain, by Baycrest
Defy Dementia is an empowering new podcast by Baycrest that is dedicated to helping you reduce your dementia risk. Join us on a captivating exploration of key dementia risk factors as we interview experts, hear inspiring stories from persons with lived experience, and share practical advice to help you optimize your aging journey. Tune in and subscribe at defydementia.org or anywhere you get your podcasts, and unlock the power to age fearlessly and defy dementia.
Each episode will be complemented by a short video, infographic, and related resources to help you take control of your brain health.
Defy Dementia is hosted by Jay Ingram (Canadian author and broadcaster) and Dr. Allison Sekuler (President and Chief Scientist, Baycrest Academy for Research and Education, and the Centre for Aging + Brain Health Innovation). The podcast is generously funded by the Public Health Agency of Canada, the Slaight family fundation and CABHI.
About Our Hosts
Jay Ingram has more than 40 years of experience as an author, broadcaster, and science communicator. He was co-host of Discovery Channel's science show, Daily Planet, for 16 years, and was instrumental in helping shape the program format. He also hosted CBC Radio’s Quirks and Quarks for 12 years, earning him two ACTRA Awards, and had a weekly science column in the Toronto Star for 12 years. He has written 20 books. In 1984, Jay was awarded the Sandford Fleming Medal from the Royal Canadian Institute for his efforts to popularize science, and he also earned the Royal Society of Canada’s McNeil Medal for the Public Awareness of Science in 1997. In 2000, Jay was awarded a Michael Smith Award for Science Promotion by the Natural Sciences and Engineering Research Council of Canada. He is a recipient of the Queen Elizabeth II Diamond Jubilee Medal and in 2009 he was named to The Order of Canada. In addition, he is the 2015 recipient of the Walter C. Alvarez award for medical writing given by the American Medical Writers Association.
Dr. Allison Sekuler (FSEP, FPsyS, FAPS) is the Sandra A. Rotman Chair in Cognitive Neuroscience at Baycrest’s Rotman Research Institute, the President and Chief Scientist at the Baycrest Academy for Research and Education and at the Centre for Aging + Brain Health Innovation (CABHI). A graduate of Pomona College (BA, Mathematics and Psychology) and the University of California, Berkeley (PhD, Psychology), Dr. Sekuler holds faculty positions in the Department of Psychology at the University of Toronto and the Department of Psychology, Neuroscience and Behaviour at McMaster University. Her foundational research uses behavioural and neuroimaging approaches to understand perception, cognition, and the brain; and her clinical and translational research aims to develop methods to prevent, detect, and treat age-related sensory and cognitive decline. Dr. Sekuler has won numerous national and international awards for research, teaching, and leadership – including serving as the country’s first Canada Research Chair in Cognitive Neuroscience and recently being named one of WXN's Top 100 Most Powerful Women in Canada (2019).