How to be a Better Advocate for Yourself and Your Loved One

In this fourth and final episode of our special series in partnership with Stanford Healthcare, our guest Susan Evans shares the ins and outs of caregiving, and talks about her work to support other caregivers dealing with the challenges of Alzheimer’s Disease.  As a caregiver, Susan worked to ensure her dad was safe and well cared for.  She and her brother incorporated humor into their caregiving journey, and now she works to ensure other caregivers have the resources they need.  

Here are a few highlights from our conversation:

• Susan knows the power of story sharing, and how caregivers can learn from each other.
• When her dad began experiencing symptoms of Alzheimer’s Disease, he took himself to his doctor at Stanford Healthcare.  
• Susan recommends taking advantage of the present time caregivers have, to be in the moment instead of trying to remind your person of things they can’t recall.
• Challenges from Alzheimer’s Disease vary from person to person, and caregiver to caregiver.
• Despite the hard times, Susan has found fulfillment and meaning in her caregiving roles. 

You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org

Connect with our special series sponsor Kensington Senior Living:

Website: https://kensingtonseniorliving.com/

Social media:  Instagram    LinkedIn   Facebook

Information for Jennifer O’Brien

Website: jenniferaobrien.com 

Read more about Jennifer O’Brien here.

Purchase your copy of Care Boss by Jennifer O’Brien here.

Buy your copy of The Hospice Doctor’s Widow: An Art Journal of Caregiving and Grief here. 

Hospice Navigation Services is here for you.  If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website:  theheartofhospice.com

Email:  [email protected]

More podcast episodes:  The Heart of Hospice Podcast

Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].