Butterflies and Breast Cancer Amid Dementia Caregiving with Allene Symons  artwork
AlzAuthors: Untangling Alzheimer's & Dementia

Butterflies and Breast Cancer Amid Dementia Caregiving with Allene Symons

  • S2024E125
  • 49:39
  • October 1st 2024

Marianne and Christy engage in a heartfelt conversation with Allene Symons, devoted caregiver to her late husband Allen, who battled Lewy Body dementia. She’s the author of Love in a Time of Caterpillars: A Memoir of Monarchs and Caregiving. Her unique perspective on utilizing butterfly gardening as a source of therapy and joy, along with her insights on managing personal health crises during caregiving, make her a compelling and relatable guest. Allene shares how their hobby of tending to a butterfly garden became a source of therapy and hope, offering moments of respite and joy amidst the challenges of dementia. The simple act of observing caterpillars transforming into butterflies not only brought light to her husband's eyes but also became a cherished activity that bonded their caregivers with the natural world, providing a sense of purpose and connection. Allene's story beautifully illustrates the profound impact of outdoor activities and nature therapy in dementia care, showcasing the power of finding beauty and comfort in the midst of adversity. Her experiences highlight the importance of nature therapy, and the challenges faced by caregivers, especially amidst the disruptions caused by the COVID-19 pandemic. She also shares the difficulties she endured when she was diagnosed and treated for breast cancer during the pandemic.

Quote

"The extreme flexibility we need when we're caregivers who are a loved one with dementia is core to the journey."

In this episode you will:

  • Discover the unexpected connection between butterfly gardening and dementia care.
  • Find out how one caregiver found joy and solace in nature therapy.
  • Learn effective strategies for managing technology with dementia patients.
  • Understand the unique impact of COVID-19 on dementia care and how to navigate it.
  • Explore the compassionate use of loving lies in dementia caregiving.
  • Embrace the importance of outdoor activities in improving the emotional well-being of dementia patients.

After the podcast

Read Allene’s AlzAuthors post: we'll get this once it's published.

Connect with Allene

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Purchase Love in a Time of Caterpillars now.

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Mentions

Alzheimer’s Association Companion cards PDF (download and print) 

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

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Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

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AlzAuthors: Untangling Alzheimer's & Dementia

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


Meet Our Hosts

Marianne Sciucco avatar
Marianne Sciucco
Podcast Producer and Host

Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.

Christy Byrne Yates avatar
Christy Byrne Yates
Co-host and Producer

Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

Support Us

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.