Dr. Barbara Ella Milton Jr. Untangles Caregiving While Battling Cancer
- S2022E48
- 1:13:18
- January 17th 2022
Caring for a mother with Alzheimer’s can be difficult. Compound that with your own cancer diagnosis and treatment, as well as 90 miles between you, and the experience borders on impossible. But Dr. Barbara Ella Milton Jr. heeded her mother’s call to step in and offer her support throughout her journey. She asked herself three important questions when she got the call: Could I? Should I? Would I? The answers were yes, yes, and yes.
So began their dementia journey, after lifelong relationship struggles and difficulties encountered due to poverty, racism, and homophobia. She tells her story in her memoir, Heeding the Caregiver Call: The Story of Barbara Ella Milton, Sr. and Alzheimer’s Disease.
Barbara is a disabled, retired clinical social worker who, for forty years, worked on behalf of children and communities and for progressive causes. She writes about her life, her social work career, and her research on African American resilience. Her goal is to use her energy for personal healing, advocacy, and to put love and hope into the world. She was born in Camden, New Jersey as the only child of Barbara Ella Milton Sr., who died from Alzheimer’s in January 2019. Barbara lives in North Jersey with her wife, Kay. They enjoy a life rich with family and friends.
In this episode, we discuss how she managed her mother’s care while managing her own, dealing with deep-rooted trust issues, becoming the conductor of an orchestra of help, and the 40 first dates of iterative grief.
Editor’s Note: With our deepest sympathies and great sadness, we must add that Barbara passed away on October 9, 2023.
After the Podcast
Read Barbara’s AlzAuthors Post
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AlzAuthors: Untangling Alzheimer's & Dementia
Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
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Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.
Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.
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AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.