Empowering LGBTQ+ Caregivers: Stories of Love, Loss, and Triumph
- S2024E117
- 1:02:19
- June 18th 2024
This podcast is a replay of our recent panel discussion on LGBTQ+ caregiver concerns, hosted by Sue Evans of Kensington Senior Living and AlzAuthors. Authors Laura Davis, Christopher MacLellan, Vincent Zappacosta, and Douglass Christensen joined Sue, Christy and I as we delved into the complexities of caregiving within the LGBTQ+ community. They shared personal stories, insightful advice, and meaningful discussions about their caregiving journeys, offering knowledge and support to others currently caring for a loved one.
Empathy emerged as a recurring theme during the discussion. The group explored how understanding and compassion are foundational to a positive caregiving experience, especially in the face of stigmas surrounding dementia and LGBTQ+ identities.
The panelists underscored the critical importance of legal documents such as power of attorney and healthcare proxies. These tools grant caregivers the authority needed to make vital decisions during emergencies. The LGBTQ+ community, in particular, benefits from these preparations to navigate potential biases and ensure their loved ones’ wishes are honored. They emphasized that preparing documents and passwords in advance can prevent needless complications, resonating with caregivers who might find themselves thrust into unexpected situations.
The episode illuminated unique challenges faced by LGBTQ+ caregivers. Issues such as isolation and the need to select healthcare providers comfortable with their orientation were discussed candidly. Positive experiences in inclusive areas like California and New York City contrasted with occasional instances of discrimination, as shared by Vincent and Douglas when they faced resistance in having Douglass recognized as family. Legal tools and personal anecdotes underscored the power of preparedness in overcoming personal bigotry and ensuring smooth caregiving and end-of-life processes.
The insights from this episode of the AlzAuthors podcast offer hope and guidance for caregivers, especially those navigating the additional layers of complexity tied to LGBTQ+ identities.
About the Authors
Laura Davis, The Burning Light of Two Stars
Christopher MacLellan, What's the Deal with Caregiving?
Vincent Zappacosta and Douglass Christensen, Dementia-Mama-Drama
About the Moderators
Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story
Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
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AlzAuthors: Untangling Alzheimer's & Dementia
Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Meet Our Hosts
Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.
Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.
Support Us
AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.