Untangling Art in Dementia Care with Katya De Luisa
- S2021E24
- 57:03
- May 24th 2021
Katya De Luisa is an artist, expressive arts program designer, freelance writer, and author with 20 years’ experience working with those living with dementia and their families. She firmly believes that when we change the way we look at something what we look at changes.
Katya’s experience working in long-term care facilities as both a caregiver and as an art director has given her a wealth of insight into the dementia diseases, family dynamics, communication, miscommunication, and more.
Her passion is communicating with people in late-stage disease using the visual arts, collage in particular. She believes that no matter how advanced a person’s dementia may be there is still a person inside who is reachable if we use the right tools and methods.
She is the founder and director of the non-profit The Infinite Mind Dementia Project in Costa Rica, and the author of the book Journey Through the Infinite Mind: The Science and Spirituality of Dementia.
In this episode overflowing with practical advice and much to think about, we discuss how to connect with those who have dementia, why we should “move into the now,” tips on how to evaluate a nursing home, and why dementia instills such paralyzing fear in all of us, as individuals and as societies.
Read Katya’s AlzAuthors Post: https://alzauthors.com/2021/02/02/katya-de-luisa-alzheimers/
Start reading Journey through the Infinite Mind: The Science and Spirituality of Dementia now! https://amzn.to/3nB6zcC
Note: We are an Amazon Associate and may receive a small commission from book sales.
Connect with Katya De Luisa
Website: https://www.theinfinitemind.org
Blog: https://www.theinfinitemind.org/category/katyas-blog/
Facebook: https://www.facebook.com/katya.deluisa.37
Twitter: https://twitter.com/TheInfiniteMin1
LinkedIn: https://www.linkedin.com/in/katya-de-luisa-5a789319/
Info on MP3 players for those with dementia:
The Purple Angel (UK): https://purpleangel-global.com/mp3-players/
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
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AlzAuthors: Untangling Alzheimer's & Dementia
Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Meet Our Hosts
Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.
Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.
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AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.