James Russell Untangles Caring for a Daughter with Dementia artwork
AlzAuthors: Untangling Alzheimer's & Dementia

James Russell Untangles Caring for a Daughter with Dementia

  • S2021E43
  • 56:35
  • November 15th 2021

James Russell is a man caring for his daughter with early onset Alzheimer’s in assisted living. (Lynne Russell passed away on January 19, 2024.) Lynn was diagnosed in 2017 at the age of 51. She represents the fourth generation of the Russell family affected by dementia. In the early days of her diagnosis, Jim, her dad, and her mother, Karen, relocated from their home to be closer to Lynn, and to assist with the care of her three growing sons. Eventually, Karen succumbed to cancer and Jim carried on, moving to an apartment two blocks from Lynn so he can be involved daily in her life. He tells their story on his blog, Nevertheless Dementia, We Persist, where he recounts the daily struggles, joys, and epiphanies of life with Alzheimer’s.

In many ways, Lynn’s condition has brought them closer together, especially as Jim is researching and writing a memoir about their experience which has allowed him to enter parts of his daughter’s life he had not ventured into before. His research has given him the privilege of interviewing many of her friends and work colleagues across her lifespan and he now sees his daughter in a whole new light, appreciating accomplishments he knew nothing of and seeing her through others’ eyes.

In this episode, we discuss the wonders of the village that emerged to help him care for Lynn, how he goes about documenting her life, and how we can support someone in assisted living.

Read James’ AlzAuthors Post

https://alzauthors.com/2020/09/10/james-russell-blogger-younger-onset-alzheimers/

Start reading Nevertheless Dementia We Persist now!

https://neverthelessdementiawepersist.com/

Connect with Jim

Jim on Facebook: 

https://www.facebook.com/james.s.russell.3

Twitter: https://twitter.com/james_s_russell

Connect with Lynn

Facebook: https://www.facebook.com/lynneru

Find Jim’s COVID-19 Videos of Support here: https://alzauthors.com/covid-19/

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

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AlzAuthors: Untangling Alzheimer's & Dementia

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


Meet Our Hosts

Marianne Sciucco avatar
Marianne Sciucco
Podcast Producer and Host

Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.

Christy Byrne Yates avatar
Christy Byrne Yates
Co-host and Producer

Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

Support Us

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.