About Love Stories: Keeping Romance Alive in Dementia Care
Caring for a spouse with Alzheimer’s or other dementia carries with it a lot of changes and uncharted territory. At the heart of these changes may be the very foundation of what makes you a couple: romance. New roles, a new lifestyle, and sometimes new living arrangements can take their toll on even the closest of couples.
On Wednesday, February 9th, 2022, AlzAuthors Live! presented Love Stories: Keeping Romance Alive in Dementia Care., a virtual Q&A. This one-hour program featured four of our authors sharing their personal stories of staying connected with their spouse in a variety of care situations. This is the audio replay of that event. You may also watch it on YouTube.
Meet Our Authors
Richard Creighton: Blogger at Living With Alzheimer’s, and an AlzAuthors Associate, caring for his wife, Kate, at home with Alzheimer’s
Anthony Copeland-Parker: Author of Running All over the World, Our Race Against Early Onset Alzheimer’s, traveling the world and running marathons with his wife, Cat, after she was diagnosed with early-onset Alzheimer’s
Gincy Heins: Author of Before the Diagnosis: Stories of Life and Love Before Dementia, co-author of 365 Caregiving Tips: Practical Tips from Everyday Caregivers, and an assistant manager at AlzAuthors, caring for her husband, Steve, at home with Mild Cognitive Impairment
Sue Ryan: Author of Our Journey of Love, 5 Steps to Navigate Your Caregiving Journey, caring for her husband, Jack, in memory care
Areas of discussion included:
Seeing your partner (and yourself) in a new light
Maintaining spousal roles
Continuing a partnership
Dealing with a forever altered romantic relationship
Dealing with behavior changes
Coping with grief
Moving to memory care
You will come away with fresh insights and ideas for your own dementia journey.
What participants said:
- I’m impressed with the positive attitude of the caregivers and the strategies they employ.
- I love how each couple has kept up their own ways of socializing or managing. It goes to show how unique each relationship is.
- This has been so rich and wonderful. I am grateful to all the presenters.
- All of the panelists are so inspiring! I'm so grateful to hear their stories.
- I love the way our panelists are so supportive of one another.
- You are all remarkable, and a great inspiration.
- Thank you for sharing so many honest thoughts.
Remember: You are not alone. 💜
About the Podcast
Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.
AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .
Thank you for listening.
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Support AlzAuthors at https://alzauthors.com/donate
Please subscribe to this podcast and leave leave a review. Sharing it with others on a dementia journey is much appreciated.
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AlzAuthors: Untangling Alzheimer's & Dementia
Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.
Meet Our Hosts
Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.
Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.
AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.