Live Q&A - Love Stories: Keeping Romance Alive in Dementia Care artwork
AlzAuthors: Untangling Alzheimer's & Dementia

Live Q&A - Love Stories: Keeping Romance Alive in Dementia Care

  • S8E55
  • 1:06:08
  • March 7th 2022

About Love Stories: Keeping Romance Alive in Dementia Care

Caring for a spouse with Alzheimer’s or other dementia carries with it a lot of changes and uncharted territory. At the heart of these changes may be the very foundation of what makes you a couple: romance. New roles, a new lifestyle, and sometimes new living arrangements can take their toll on even the closest of couples.

On Wednesday, February 9th, 2022, AlzAuthors Live! presented Love Stories: Keeping Romance Alive in Dementia Care., a virtual Q&A. This one-hour program featured four of our authors sharing their personal stories of staying connected with their spouse in a variety of care situations. This is the audio replay of that event. You may also watch it on YouTube.

Meet Our Authors

Richard Creighton: Blogger at Living With Alzheimer’s, and an AlzAuthors Associate, caring for his wife, Kate, at home with Alzheimer’s

Anthony Copeland-Parker: Author of Running All over the World, Our Race Against Early Onset Alzheimer’s, traveling the world and running marathons with his wife, Cat, after she was diagnosed with early-onset Alzheimer’s

Gincy Heins: Author of Before the Diagnosis: Stories of Life and Love Before Dementia, co-author of 365 Caregiving Tips: Practical Tips from Everyday Caregivers, and an assistant manager at AlzAuthors, caring for her husband, Steve, at home with Mild Cognitive Impairment

Sue Ryan: Author of Our Journey of Love, 5 Steps to Navigate Your Caregiving Journey, caring for her husband, Jack, in memory care

Areas of discussion included:

Seeing your partner (and yourself) in a new light

Maintaining spousal roles

Continuing a partnership

Maintaining equality

Dealing with a forever altered romantic relationship

Nurturing intimacy

Handling loss

Battling loneliness

Dealing with behavior changes

Managing guilt

Coping with grief

Moving to memory care

You will come away with fresh insights and ideas for your own dementia journey.

What participants said:

  • I’m impressed with the positive attitude of the caregivers and the strategies they employ.
  • I love how each couple has kept up their own ways of socializing or managing. It goes to show how unique each relationship is.
  • This has been so rich and wonderful. I am grateful to all the presenters.
  • All of the panelists are so inspiring! I'm so grateful to hear their stories.
  • I love the way our panelists are so supportive of one another.
  • You are all remarkable, and a great inspiration.
  • Thank you for sharing so many honest thoughts.

Remember:  You are not alone. 💜


About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

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Please subscribe to this podcast and leave leave a review. Sharing it with others on a dementia journey is much appreciated.

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AlzAuthors: Untangling Alzheimer's & Dementia

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Meet the Host

Marianne Sciucco avatar
Marianne Sciucco
Podcast Producer and Host

    Marianne is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story. She is also a founding member of AlzAuthors and a director and manager. With more than 250 authors contributing to AlzAuthors, there is a wealth of knowledge to share.

    “Our goal is to eliminate the silence and stigma surrounding the most important disease of our generation, estimated to affect 50 million people worldwide,” she says. “We’ve curated hundreds of powerful and profound stories, spanning all disease types and stages through a variety of genres. And now you can listen to these authors tell their stories on the podcast.”

    Support Us

    AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.