REPLAY: Peter Berry and Deb Bunt Untangle How to Live Well With Dementia artwork
AlzAuthors: Untangling Alzheimer's & Dementia

REPLAY: Peter Berry and Deb Bunt Untangle How to Live Well With Dementia

  • S8E56
  • 55:02
  • March 14th 2022

This podcast is a replay of one that appeared last year with our friends Peter Berry and Deb Bunt. They’ve written a new book, a volume of poetry, musings, that Peter sent to Deb via text messages at the end of long days living with dementia. She transcribed his words and lovingly put them in a book called Walk With Me: Musings Through The Dementia Fog. Its pages are exquisitely illustrated with the work of Daniel Ruffles, a talented friend and photographer who captures the beauty of the Suffolk landscape and coastal areas where Peter and Deb live. In celebration of this vital new addition to dementia literature, we're replaying their podcast interview. After the podcast, you can read more about the book on our website, AlzAuthors.com. Enjoy!

About Peter and Deb

Peter Berry was diagnosed with early onset Alzheimer’s at age 50 and took an early retirement from his job working in the family’s timber business. After the devastating diagnosis, he became depressed but, being a ‘glass half full’ personality, battled through his depression and focused on his lifelong passion for cycling. He has used this passion to raise awareness of the condition, particularly in younger people.

Peter’s whole philosophy is to live well with dementia and to inspire others to do the same. He maintains an active lifestyle due to his love of cycling, which keeps him fit both below and above the eyebrows, he says. He rides a penny farthing, a single speed bike, a road bike, and a 1950's Claud Butler, although not all at the same time – he’s good, but not that good, he jokes.

Along with his friend Deb Bunt, Peter cycles nearly every day. Their travels throughout Suffolk, England have led them to have many serious heart-to-hearts about his disease, which Deb put together in a book called Slow Puncture: Living Well with Dementia.

“It's a book about me,” Peter says, “but a book I have never read and never will read as my short-term memory means I have forgotten the previous sentence as soon as I have started a new one.”

In this episode we discuss the difficulties encountered with a dementia diagnosis at age 50, the financial pressures he’s had to overcome, and how cycling has made life with COVID tolerable.

Read their AlzAuthors Posts:

Peter Berry Who Lives with Dementia Shares His Poetry in: Walk With Me, Compiled by Deb Bunt

Slow Puncture: a Memoir About Living Well with Early Onset Alzheimer’s by Peter Berry and Deb Bunt

So Much To Say: Peter Berry Tells His Story While He Can

* * *

Purchase Walk With Me: Musings Through The Dementia Fog on Amazon

Purchase Slow Puncture: Living Well with Dementia on Amazon

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Peter and Deb

Website

Facebook: Deb

Facebook: Peter

Twitter

Instagram

 About the Podcast

Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.

AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

AlzAuthors

Support AlzAuthors at https://alzauthors.com/donate

Please leave a review and share this podcast with a caregiver or loved one on a dementia journey.

AlzAuthors: Untangling Alzheimer's & Dementia

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Meet the Host

Marianne Sciucco avatar
Marianne Sciucco
Podcast Producer and Host

    Marianne is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story. She is also a founding member of AlzAuthors and a director and manager. With more than 250 authors contributing to AlzAuthors, there is a wealth of knowledge to share.

    “Our goal is to eliminate the silence and stigma surrounding the most important disease of our generation, estimated to affect 50 million people worldwide,” she says. “We’ve curated hundreds of powerful and profound stories, spanning all disease types and stages through a variety of genres. And now you can listen to these authors tell their stories on the podcast.”

    Support Us

    AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.