Two Diagnoses, One Love Story: Dissociative Identity Disorder & Alzheimer’s
- S2024E119
- 1:03:59
- July 16th 2024
How would you navigate the complication of having your spouse display Dissociative Identity Disorder - previously called Multiple Personality Disorder - alongside symptoms of Alzheimer’s? Today, we delve into the memoir "Don't Forget to Dance" with Marc Alderdice for our June Books & Chit Chat with Aging and Amazing. Marc takes us on a poignant journey through his wife Mary's battle with early-onset Alzheimer's, starting at age 59, and the extraordinary challenges they faced together, including her struggles with dissociative identity disorder.
We explore the deeply personal experiences that shaped Marc's narrative, his wife Mary’s determination to do all she could to prepare herself for a dementia diagnosis and how his scientific background influenced their approach to Mary's care. Marc also shares how he embraced the role of a male caregiver in a predominantly female sphere, the importance of self-care, and the insights gained from support groups continuing to meet virtually since Covid.
You'll hear about the significance of activities and physical gestures in communicating with nonverbal loved ones, the inspiration behind the book's title, and how Mary, despite her diagnosis, found joy in new hobbies and activities.
Join us as we uncover themes of love, resilience, and the relentless pursuit of happiness amidst the trials of Alzheimer's.
Quote:
I think our journey is positive and encouraging in the sense that it shows you really can make the best out of a bad situation. The person with Alzheimer's and the loved ones can be as happy as possible. It may take some work, and it may take a little bit to change your mindset for how you approach things, but it certainly worked for us. - Marc Alderdice
In this episode, you will:
- Understand the unique experiences of the Alzheimer's journey
- Prepare yourself emotionally and mentally for the impact of Alzheimer's,
- Discover strategies to arm yourself with the resilience and coping strategies needed to face the journey ahead.
- Explore the relationship between dissociative identity disorder and Alzheimer's
- Discover valuable techniques for communicating with nonverbal Alzheimer's patients, fostering deeper connections and understanding.
After the Podcast
Listen to Previous Podcast with Marc
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About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
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AlzAuthors: Untangling Alzheimer's & Dementia
Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us each week as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Meet Our Hosts
Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story, based on a couple she met through her work. It is a testament to the power of love in the face of this heart-wrenching disease. Marianne cared for hundreds of dementia patients over a 20+-year nursing career. She provided care to her stepfather during his dementia journey, and witnessed the painful decline of four beloved aunts to the disease. She's a founding member of AlzAuthors, sits on the Board, and is a director and manager. She can talk about AlzAuthors all day.
Christy Byrne Yates is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, Building a Legacy of Love: Thriving in the Sandwich Generation recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.
Support Us
AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. The podcast is one way we provide knowledge, comfort, and support to busy caregivers desperate for information. Your generosity will help us to continue our mission to lift the silence and stigma that often accompanies a dementia diagnosis. Please consider making a donation. Thank you.